Tough day today. Avery has been uncomfortable most of the day and hasn't slept. Everything we have tried has at best been a temporary fix, from feeding to diaper changes to rocking--and we even tried the oxygen without effect. Just tried tylenol. Still jaundiced but making plenty of dirty and wet diapers. Don't think the jaundice has anything to do with the discomfort. She appears a little duskier today with some cyanosis around her nose and mouth. Certainly we are not hitting the panic button, but at the same time it is hard to feel great about what has transpired today.
As you read this, we appreciate your prayer not only for Avery but also for those whose hearts ache from having watched loved ones die and in particular for those who have experienced the pain of loss of a child. We grieve with you.
On a brighter note, Liv really wanted to hold Avery today, creating photo op: